Well done Amir Khan for meeting Nihal Bitla, who was diagnosed with Progeria as an infant and weighs just under two stone.
What is Progeria
Progeria (Hutchinson–Gilford progeria syndrome,HGPS, progeria syndrome) is an extremely rare genetic disorder wherein symptoms resembling aspects of aging are manifested at a very early age.The disorder has a very low incidence rate, occurring in an estimated 1 per 8 million live births. Those born with progeria typically live to their mid teens to early twenties.It is a genetic condition that occurs as a new mutation, and is rarely inherited, as carriers usually do not live to reproduce.
After Reading the Post one can be amazed by sensibility of Kid, can learn a one or two lesson in dealing with Life while stressed to extreme.
Amir Khan, we expect these Humanitarian work from you and you should be known for these commendable godly acts but not your recent insensible barbs regarding Intolerance and India.
“My parents found out I had progeria when I was 1 year old, but they continued to give me a normal lifestyle. Like any other child, I went to school everyday, played with my classmates and did my homework. When I was in the 4th standard and the movie Paa released, my classmates began teasing me and calling me Auro — I felt terrible at that point, so I came home and told my parents. My dad told me to tell them ‘to chill’ and that ‘i’m special’ – so I did. I don’t blame those who don’t understand me, they like me are children after all.
I don’t go to school often now but I have a lot of friends – we play cricket together in the evening. I’m fascinated with Robots, so I keep researching on them and playing with the Robot toys I have– hopefully someday I’ll make one of my own too. I love to paint as well…so I paint all day and do things that make me happy. I have a bucket list…I want to go to Disneyland and my father says we’re going soon! I want to see the Honda Asimo Robot and I hope that will happen quickly too.
I want to meet Aamir Khan and thank him for the movie Tare Zameen Par which gave me courage–but there’s not much progress on that one yet!
To be honest I don’t know much about the illness I have, except that I have the rare power of being young and old at the same time.
That makes me believe that I can send a message to people. A message that life can go by quickly and that each day is more valuable than the next. I also believe that everything happens for a reason and I’m happy everyday. The way I look at it I’ve been given a finite time to do everything I love every single day without fear. Above all, I hope that people know that our time here is special and life is incredibly beautiful in every single way.”